At 3 months old our son Jack was diagnosed with an inoperable brain tumor. We were devastated to say the least and our world has been forever changed.
Jack has endured 3 brain surgeries for a biopsy and shunts, MRI's, countless CT scans, a feeding tube placement and many more procedures we have lost track of. In March 2010 he completed a 16 month chemo protocol. After a 13 month break we found out the tumor was already active again. During 2011 we tried 3 different chemo regimens to control the tumor, it took 9 months of toxic treatment to find a protocal that worked. We were able to finally have 2 years w/o treatment but unfortunately this past Feb '17 the tumor started to grow again. In order to preserve his remaining eyesight we started treatment again, he takes a daily oral chemo and has fortunately been able to tolerate it very well! This is a medication that has been newly discovered to attack the DNA duplication he has, thanks to new research we are able to avoid highly toxic chemotherapy. Update '18 Unfortunately the tumor started to grow while on our new medication so we have found a clinical trial. We have just started and hope it will control the tumor so Jack can still enjoy a great quality of life.
Today our little man is doing well thanks to all of the prayers, love and support from our family, friends, medical team, and those we have yet to meet. He is an incredible boy who loves everyone who gives him a smile. Everyday we are so blessed to have Jack in our lives and he is a constant reminder as to what is really important in life.
We are raising money to help other children, like Jack, win their battle with cancer and prevent some of the long term and devastating side effects from treatment. Hopefully one day we will have a cure!
It's Time to Fly!
This summer, I will be participating in an event called Time to Fly benefiting Children's Cancer Research Fund at Phalen Park in St. Paul, Minnesota.
Children's Cancer Research Fund supports cutting-edge research in pediatric cancer and has raised more than $100 million to help kids with cancer over the past 28 years.
I want to help raise money for this cause so that kids with cancer can be cured from their disease and lead healthy, normal lives.
I hope you will join me in my race aginst childhood cancer by supporting me with a pledge or joining me at Time to Fly in June.
Why Should You Help?
- 13,000 kids each year are diagnosed with cancer.
- Childhood cancer is the leading cause of death due to illness in United States children. More kids die from childhood cancer every year than die of asthma, cystic fibrosis, pediatric aids and diabetes combined.
- Despite dramatic increases in five-year survival rates, more than 100,000 years of life are lost to childhood cancer each year.
Children's Cancer Research Fund
Children's Cancer Research Fund is a non-profit organization dedicated to finding a cure for childhood cancer. The organization also educates the public about pediatric cancer and supports quality-of-life programs for pediatric cancer patients and their families.
Everyone who joins in our mission encourages our resolve and strengthens our dedication to eliminating cancer as a major health problem for our children.