Join me in the fight against EB - Join Team PUCK

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Christie Zink

452 percent of goal achieved.

Goal: $2,500.00
Achieved: $11,299.94

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It's Time to Fly! June 30th

As many of you know Epidermolysis Bullosa is something I have become somewhat passionate about. Not only do I try to be a proactive advocate, I am also very committed to raising awareness and helping any efforts to find a cure. This summer I have an opportunity to be a part of an event that will allow me to raise money for the research team in Minnesota.
PUCK (a parent driven initiative of Children's Caner Research Fund) was started and is run by parents whose daughters both suffered from Epidermolysis Bullosa, a devastating genetic skin disorder. Sarah died shortly before receiving her bone marrow transplant.

I will be walking to honor the memory of Tripp & Bella and also sweet Quinn who just lost her fight with EB on April 7, 2012. I hope that you will help me raise money for Pioneering Unique Cures for Kids (PUCK) and the research team at the University of Minnesota as I participate in this year's Time to Fly event on Harriet Island in St. Paul. Your donation can make a tremendous impact in to those who suffer the devastating reality of EB.

And the wonderful thing is we recently received news that because of a grant that was received, all donations  made will be matched dollar for dollar.  That means that your donation will be doubled!

Thank you so much for your support and your dadication to helping in this fight against EB

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raise. walk. cure. Saturday September 9, Phalen Park